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Chris Green
Member



Newark-upon-Trent
United Kingdom


2301 Posts

Posted - 20/01/2009 :  06:31:10  Show Profile  Visit Chris Green's Homepage Send Chris Green a Private Message  Reply with Quote
The senses, books of interest:

"Blackwell Handbook of Sensation and Perception" edited by E. B. Goldstein, 2005, ISBN 0631206841

"Dowsing a Journey Beyond Our Five Senses" by Miller Hamish, 2007, ISBN 9781904263531

Apart from the 5 basic senses as taught in schools, there are a further 17, which are generally accepted and a further 16, which are in the process of scientific investigation.

There are also the 11, so called, Psi senses, which are part of the electro-magnetic sphere and have been actively studied for the last 57 years by the US, Russian, British and European Governments, both under independent study and military. There is a growing body of evidence, which is sufficient to suggest that these senses do exist as a reality. However, no general summation or cohesive set of agreed standards has been written as yet and studies remain separate.

When I talk about sensory overload, I am not just meaning the basic five senses, I am refering to all of the senses and that, for me, sensory overload is an avalanche effect, in that I am hit by a few bits of sensory snow and then get hit by the full body of the sensory overload.

That is to say it is the roller coaster effect: the stress levels rise and then peak and then there is a cascade effect (as the car accelerates downwards) of being hit very rapidly by all of one's senses. Maximum overload being equivalent to maximum G Force (as the car goes round bends or loops).

At a practical descriptive level the various authorities have yet to agree a common lingua franca between Neuro-science, Psychology, Psychiatry, Anatomy and Physiology, Pharmacology, General Medical and General Surgical. Until a set of agreed descriptors and naming conventions are forthcoming there will be much disagreement and obfuscation.

Regards,
Chris Green
frankgreen2@virginmedia.com
http://chrisgreen.weebly.com/

Service before self

'A Poppy in My Buttonhole' available now SEE:
http://www.rossendalebooks.co.uk/
http://www.lulu.com/content/2791550

My next book will be "The Crcodile Chronicles" and is projected to be launched 2015 or a quarter past eight in time for Christmas.

Edited by - Chris Green on 20/01/2009 14:41:56
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alisonmitchuk
Member

United Kingdom

85 Posts

Posted - 20/01/2009 :  09:24:54  Show Profile  Visit alisonmitchuk's Homepage Send alisonmitchuk a Private Message  Reply with Quote
Hi Chris,
I totally understand where your coming from, my son too has huge problems with sensory issues, everyday he has a melt down when I have hunted down the days before clothes to wash he just canít stand the feeling of newly washed clothes and will go to great lengths to hide them so he can put them back on. He removes all bedding apart from a sheet on his bed because he cannot tolerate a cover on his duvet or pillowcase on his pillow. it takes him over an hour to put on a pair of pants socks T-shirt (he has not worn long sleeves for years) and trousers, everything has to feel right to him and he will start the process all over if he is interrupted, or they just donít feel right, he will wear a light weight coat for school albeit the same make colour design as the previous 7 coats all labels are cut out of everything, this coat has never been zipped up even with the Ėfreezing temperatures
After encouraging him into shorts for the summer months he has been known to be still wearing them into November, haircuts, toe and fingernail cutting is a traumatic experience, I dread going to Clarkes for new shoes! You can see the assistants pulling straws as we walk in!
Food remains an issue, but he is learning to accept a fairly healthy diet now.
He is also colour sensitive as he disliked the colour of his bedroom and spent many months picking the paint off with his finger nail, until he told us the colour of his choice which is always red; he never picked it again once we painted it red
He still cannot stand many sounds ones I donít even hear! The sound of the Hoover drives him mad, and has to be told to remove himself while I clean up. The sound of the toilet flushing he has learned to cope with, but will never flush it himself, so I guess he still has anxieties there, routines cannot be changed or broken unless he chooses to do so himself, strong smells cause him to vomit, when he was younger he screamed for me to turn the sun off, the list is endless, I understand completely how exhausting it must be for someone with sensory issues, itís equally exhausting keeping up with them as a mum, his mind never sleeps, and neither does his body, In the early hours of the morning, I often stand by his bed and watch him sleeping at peace, itís a beautiful scene
Take Care
Alison
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Chris Green
Member



Newark-upon-Trent
United Kingdom


2301 Posts

Posted - 26/01/2009 :  22:08:17  Show Profile  Visit Chris Green's Homepage Send Chris Green a Private Message  Reply with Quote
I have now post an email with the Draft Zero, which is the baseline Introduction for The Autist.

It will look nothing like this in the finished book but I like to produce a foundation statement before I start to write the main event.

As to the book, I shall do 3 Chapters and a synopsis of the rest of the book and tout it around the publishing houses.

I don't feel able to undertake the marketing of another book, I am having to take things much more slowly.

Despite eating very little my weight is shooting up, fortunately I have a doctors appointment for the end of the month and I shall rquest some scans to find out what is going on.

Regards,
Chris Green
frankgreen2@virginmedia.com
http://chrisgreen.weebly.com/

Service before self

'A Poppy in My Buttonhole' available now SEE:
http://www.rossendalebooks.co.uk/
http://www.lulu.com/content/2791550

My next book will be "The Crcodile Chronicles" and is projected to be launched 2015 or a quarter past eight in time for Christmas.
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Tom Mcgreevy
Administrator



Ex-English Army ( Ex-pat Geordie ), Berkshire
United Kingdom


4098 Posts

Posted - 26/01/2009 :  22:49:16  Show Profile  Visit Tom Mcgreevy's Homepage Send Tom Mcgreevy a Private Message  Reply with Quote
Respect Chris !

http://im-a-soldier-get-me-out-of-here.weebly.com


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Chris Green
Member



Newark-upon-Trent
United Kingdom


2301 Posts

Posted - 27/01/2009 :  02:12:30  Show Profile  Visit Chris Green's Homepage Send Chris Green a Private Message  Reply with Quote
Thank you Tom, but I don't understand why.

Regards,
Chris Green
frankgreen2@virginmedia.com
http://chrisgreen.weebly.com/

Service before self

'A Poppy in My Buttonhole' available now SEE:
http://www.rossendalebooks.co.uk/
http://www.lulu.com/content/2791550

My next book will be "The Crcodile Chronicles" and is projected to be launched 2015 or a quarter past eight in time for Christmas.
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Tom Mcgreevy
Administrator



Ex-English Army ( Ex-pat Geordie ), Berkshire
United Kingdom


4098 Posts

Posted - 27/01/2009 :  02:56:55  Show Profile  Visit Tom Mcgreevy's Homepage Send Tom Mcgreevy a Private Message  Reply with Quote
Ex-Comrade in arms !
Kindred Spirit !
And a Man I am proud to call a friend !

http://im-a-soldier-get-me-out-of-here.weebly.com


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Chris Green
Member



Newark-upon-Trent
United Kingdom


2301 Posts

Posted - 27/01/2009 :  03:49:55  Show Profile  Visit Chris Green's Homepage Send Chris Green a Private Message  Reply with Quote
That's OK, still don't understand - probaby in the wrong compartment and have not put any links through to this box yet - but that does not matter.

Regards,
Chris Green
frankgreen2@virginmedia.com
http://chrisgreen.weebly.com/

Service before self

'A Poppy in My Buttonhole' available now SEE:
http://www.rossendalebooks.co.uk/
http://www.lulu.com/content/2791550

My next book will be "The Crcodile Chronicles" and is projected to be launched 2015 or a quarter past eight in time for Christmas.
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alisonmitchuk
Member

United Kingdom

85 Posts

Posted - 27/01/2009 :  08:13:40  Show Profile  Visit alisonmitchuk's Homepage Send alisonmitchuk a Private Message  Reply with Quote
Hi Chris,
I read this many years ago,and have passes it on to many friends in a Similar situation to myself


Welcome to Holland

I am often asked to describe the experience of raising
a child with a disability - to try to help people who
have not shared that unique experience to understand
it, to imagine how it would feel. It's like this:
When you're going to have a baby, it's like planning a
fabulous vacation trip - to Italy. You buy a bunch of
guidebooks and make your wonderful plans, The Coliseum,
the Michelangelo David, the gondolas in Venice. You may
learn some handy phrases in Italian. It's all very
exciting.
After months of eager anticipation, the day finally
arrives. You pack your bags and off you go. Several
hours later, the plane lands. The stewardess comes in
and says, "Welcome to Holland."
"Holland?!?" you say, "What do you mean, Holland? I
signed up for Italy! I'm supposed to be in Italy. All
my life I've dreamed of going to Italy."
But there's been a change in the flight plan. They've
landed in Holland and there you must stay.
The important thing is that they haven't taken you to a
horrible, disgusting, filthy place, full of pestilence,
famine and disease. It's just a different place.
So you must go out and buy new guidebooks. And you must
learn a whole new language. And you will meet a whole
new group of people you would never have met.
It's just a different place. It's slower-paced than
Italy, less flashy than Italy. But after you've been
there for a while and you catch your breath, you look
around, and you begin to notice that Holland has
windmills, Holland has tulips, Holland even has
Rembrandts.
But everyone you know is busy coming and going from
Italy, and they're all bragging about what a wonderful
time they had there. And for the rest of your life, you
will say, "Yes, that's where I was supposed to go.
That's what I had planned."
The pain of that will never, ever, ever go away,
because the loss of the dream is a very significant
loss. But if you spend your life mourning the fact that
you didn't get to Italy, you may never be free to enjoy
the very special, the very lovely things about Holland.

take care
Alison x

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janhedger
Administrator



United Kingdom

4230 Posts

Posted - 27/01/2009 :  13:52:56  Show Profile  Visit janhedger's Homepage  Send janhedger an AOL message Send janhedger a Private Message  Reply with Quote
That is a wonderful 'description' Alison! No regrets! Package it put it away then open up the next present and the next and the next!
Jan

We cannot stop, because if a single one of these men were taken and shot, that would be our fault - Edith Cavell
http://www.janscreativewriting.co.uk/ -updated Aug 17 - with new poems/photo's - video interviews - see PowerPoint slide shows, audio files & my books.
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Chris Green
Member



Newark-upon-Trent
United Kingdom


2301 Posts

Posted - 27/01/2009 :  19:28:00  Show Profile  Visit Chris Green's Homepage Send Chris Green a Private Message  Reply with Quote
Thanks Allison and Jan, understood that one though a change of flight plan would have my anxiety levels through the roof.

Regards,
Chris Green
frankgreen2@virginmedia.com
http://chrisgreen.weebly.com/

Service before self

'A Poppy in My Buttonhole' available now SEE:
http://www.rossendalebooks.co.uk/
http://www.lulu.com/content/2791550

My next book will be "The Crcodile Chronicles" and is projected to be launched 2015 or a quarter past eight in time for Christmas.
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Chris Green
Member



Newark-upon-Trent
United Kingdom


2301 Posts

Posted - 27/02/2009 :  19:34:56  Show Profile  Visit Chris Green's Homepage Send Chris Green a Private Message  Reply with Quote



Our exciting news continues: thanks to your incredible support for the Autism Bill - which, as you know, challenges the devastating lack of understanding and support for people with autism - the Government has introduced a number of measures which we hope will start to make a real difference to people's lives.

Six thousand people contacted their MP asking them to support the Bill, which was championed by Cheryl Gillan MP and received strong support from many of her colleagues. The Government listened, and has promised to:

compel local authorities and other local agencies to include children with autism in their plans for children's services. This will be part of a new law to be introduced over the coming year

make sure that the new adult autism strategy is effective by issuing statutory guidance to local authorities on how to implement it, and backing this up with funding. A consultation on the autism strategy will start in April.

We are delighted that the Cheryl Gillan MP Autism Bill attracted such support, and will be keeping you up-to-date with progress.

Meanwhile, you can read more about the Autism Bill's success, and other news from the NAS, below.

Best wishes


Jane Asher
President, The National Autistic Society
Getting support
Victory for Autism Bill campaigners
All aboard for the Train Walk!
Investing in Brighter Futures
Local support for people affected by autism
Exhibition showcases the creative skills of adults with autism


Victory for Autism Bill campaigners
Public and parliamentary support for the Cheryl Gillan MP Autism Bill has been overwhelming, and the Government has responded with measures to improve the lives of people with autism in England. Read more.

--------------------------------------------------------------------------------


All aboard for the Train Walk!
Join the Train Walk and help raise money for people affected by autism. Thomas & Friends‚ĄĘ are chuffed to support our brand new family-fun sponsored walk this summer. We have Train Walks taking place around the country this summer, or you can sign up to organise your own. Find out more on the Train Walk website.

--------------------------------------------------------------------------------


Investing in Brighter Futures
We have been working in partnership with The Bankers Benevolent Fund, supporting people affected by autism in the UK banking community since November 2007. Now in its second year, the Investing in Brighter Futures programme is supporting adults with autism as well as continuing to support families with children with autism. Read more.

--------------------------------------------------------------------------------


Local support for people affected by autism
We have services across the country which offer local people information, support, training, social opportunities and venues for meetings. This month, Tony McNulty MP, Minister of State at the Department for Work and Pensions and Minister for London, met adults with autism during a visit to our Ladbroke Grove autism centre in London. Read more.

--------------------------------------------------------------------------------


Exhibition showcases the creative skills of adults with autism
Art, photography, poetry and prose by adults with autism are on display at an exhibition until 28 February. The theme of all the pieces - which were entries to our creativity competition last year - is 'My life with autism or Asperger syndrome'. Read more.

--------------------------------------------------------------------------------


How to
support us Join us Shop online Donate More news
from the NAS



We hope that you are happy to receive our newsletter. If not, simply unsubscribe here and you will not receive it in future.

The National Autistic Society, registered office: 393 City Road, London, EC1V 1NG, United Kingdom.
Tel: +44 (0)20 7833 2299, Fax: +44 (0)20 7833 9666, Email: nas@nas.org.uk
VAT registration number: 653370050; a charity registered in England and Wales (269425) and in Scotland (SC039427)
Copyright The National Autistic Society 2009


Regards,
Chris Green
frankgreen2@virginmedia.com
http://chrisgreen.weebly.com/

Service before self

'A Poppy in My Buttonhole' available now SEE:
http://www.rossendalebooks.co.uk/
http://www.lulu.com/content/2791550

My next book will be "The Crcodile Chronicles" and is projected to be launched 2015 or a quarter past eight in time for Christmas.
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alisonmitchuk
Member

United Kingdom

85 Posts

Posted - 28/02/2009 :  07:41:11  Show Profile  Visit alisonmitchuk's Homepage Send alisonmitchuk a Private Message  Reply with Quote
Hi Chris
I too have been supporting this campaign, along with the (I exist campaign) itís great news, but what a lengthy process it is to get a bill passed, I started to watch the live footage, and it took them 20 mins to all get settled down to start discussions, I understand they discussed this at length for almost 6hrs, so will watch it when I have a little more time, this is long overdue
Just wish they could implement these changes in a much swifter way for the people with autism and their families

Take Care
Alison x
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Chris Green
Member



Newark-upon-Trent
United Kingdom


2301 Posts

Posted - 28/02/2009 :  08:42:56  Show Profile  Visit Chris Green's Homepage Send Chris Green a Private Message  Reply with Quote
I prefer them to take their time and to get the legislation as accurate as possible the first time without having to take it thru Parliament for revisions and amendments.

Glad you are campaigning as well on the 'I Exist' campaign.

I have never understood why everything has been aimed solely at children, after all we all grow up and become adults - I suppose it is funding and that it is easier to get money with photos of cute kiddies than it is to get the cash for a gang of grumblies. Grin.

Regards,
Chris Green
frankgreen2@virginmedia.com
http://chrisgreen.weebly.com/

Service before self

'A Poppy in My Buttonhole' available now SEE:
http://www.rossendalebooks.co.uk/
http://www.lulu.com/content/2791550

My next book will be "The Crcodile Chronicles" and is projected to be launched 2015 or a quarter past eight in time for Christmas.
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alisonmitchuk
Member

United Kingdom

85 Posts

Posted - 01/03/2009 :  09:40:52  Show Profile  Visit alisonmitchuk's Homepage Send alisonmitchuk a Private Message  Reply with Quote
Hi Chris,
I have heard this many times echoed from adults with autism.

As a parent service user of childrenís services, I also feel frustrated with lack of services, I think it depends on where the individual lives, it took me 3 years of endless meeting to get my son diagnosed, a statement of special educational needs came a year later, only then did speech and language therapy, physiotherapy and occupational therapy come on board, and in small block courses, to which you have to continually be explaining its need to be kept for any of the benefits.

I have also found since filling in the dreaded DVLA forms the decision makers are a lot tougher as nothing in my sons case has changed, other than he is a lot taller heavier and hormonal, but they have decided to reduce his allowance greatly, I have appealed, they changed their minds on one part but itís still not what he was receiving before, I now have to go through a tribunal system to fight for his rights.

I receive 4 hrs respite once a week to spend time with my other children through the direct payment scheme, donít know if you use this service but its constant time sheet filling, form filling and book keeping to satisfy the departments your using this service correctly, I am grateful for the 100% attention I can give to my other children, but often while I am filling out this paper work think is it worth it.

Ok sorry for rambling on, I know Adults get a poor deal, and I will continue to back any campaign which will improve adult services, as one day we all become an adult
Take Care

Alison x
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Chris Green
Member



Newark-upon-Trent
United Kingdom


2301 Posts

Posted - 03/03/2009 :  11:41:40  Show Profile  Visit Chris Green's Homepage Send Chris Green a Private Message  Reply with Quote
I did go for the home payments scheme, but when the assessment came through they had only accounted for income and not for my fixed expenditures, so I would have been required to top up their money by £36 per week, which I cannot do, they would have forced me deeper into debt.

What use is a system that does not take account of fixed expenditures?

I felt as though I should be living in a tent with no income and no expenditure. Grin.

Also I have physical disabilities and they are on separate paperwork from the autism and from the mental health stuff - bloody beaureaucrats - nothing but more and more paperwork.

The levels of paperwork also make it impossible for me to run it myself or to have a 3rd party do it for me; after all, if I was capable of doing the paperwork then I would be out there working would I not?

Yes I can understand parts of what I am doing but I have severely damaged short-term memory, a very slow decision process and despite all these people being toldrepeatedly that I find verbal instructions almost impossible to understand, require me to receive stuff verbally.

Why?

Are these people so bloody useless and seemingly more disabled between the ears tan I am?

Regards,
Chris Green
frankgreen2@virginmedia.com
http://chrisgreen.weebly.com/

Service before self

'A Poppy in My Buttonhole' available now SEE:
http://www.rossendalebooks.co.uk/
http://www.lulu.com/content/2791550

My next book will be "The Crcodile Chronicles" and is projected to be launched 2015 or a quarter past eight in time for Christmas.
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